Friday, July 31 • 10:40am - 12:10pm
S10: The Development of Childhood Cancer Psychosocial Clinical Care Standards

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In 2012 The Mattie Miracle Cancer Foundation (MMCF) held a Congressional Symposium on Capitol Hill that addressed the current state of pediatric psycho-oncology. Legislators and their staff members cited the lack of established standards is an impediment to initiating legislation to make psychosocial care an essential component of the medical care of children with cancer in U.S. cancer centers.

Since then, MMCF, working with a group of pediatric oncology psychosocial experts have collaborated to develop a comprehensive set of standards for the psychosocial care of children with cancer based on available evidence and, when that is insufficient, on professional consensus. Two in-person meetings were held in 2013 and 2014 and five working groups were established which have included over 40 multidisciplinary experts and patient advocates. Working groups also met regularly by teleconference to examine and synthesize the professional literature and related professional mandates, in order to create and provide evidence for psychosocial standards and to identify areas where more research is needed.

In this symposium, the MMCF Founders (Peter and Vicki Sardi-Brown) will present history behind the project, provide a summary of the current status of the project, and discuss hopes for implementation. The project leaders (Drs. Lori Wiener, Anne Kazak, Andrea Farkas Patenaude, Robert Noll and Mary Jo Kupst) will describe the process used to develop the currently recommended standards for the psychosocial care of children with cancer, including how the literature reviews were conducted, consensus calls, and the appraisal of the existing supporting literature. Each of the standards will be presented along with a summary of the evidence found. Implementation strategies and approaches to address barriers to implementation will also be reviewed. Key domains where there is insufficient evidence and future research needed will be discussed.

The timing for creating standards is critical. In 2015, the American College of Surgeons (ACoS) Commission on Cancer (CoC) will require cancer centers to implement screening programs for psychosocial distress as a new criterion for accreditation. The American Psychosocial Oncology Society (APOS) recently announced recommendations to support a new criterion for cancer center accreditation. APOS, IPOS, along with the Association of Oncology Social Workers (AOSW) and Oncology Nursing Society (ONS) endorse the new Commission on Cancer standard of psychosocial distress screening. With these new requirements, cancer clinics are seeking guidance on the development of psychosocial care programs; the proposed standards developed under the auspices of the Mattie Miracle Foundation and professional experts are ideally focused to meet this need.

Chair: Lori Wiener
Discussant: Paul Jacobsen 

Friday July 31, 2015 10:40am - 12:10pm
Liberty Ballroom Meeting Level 4

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